Hello Everyone,
Namine had her cath exam this morning/afternoon. She went down at 11 and didn't come back until 2:30. She was supposed to go down at 10, but I have no idea why it was so late by the time they came and got her. Well enough with the jibber jabber.
The cath doctor told us that her PA band has slipped and it is pinching the blood flow to one artery to her lungs and because of the way the PA band is now located it is deteriorating some of the veins and other arteries. So they are going to have to fix that when they go in for the second surgery. I don't know when the Glen procedure will take place all I know is that it will be soon. If not this week than next week. When I find out more from them tomorrow I will be sure to post.
Our friend Stephanie Brandt, whose listed on the side bar, is now back in the hospital. We ask that you not only pray for Namine, but for Steph and Jacob. Also keep all of the little kiddo's at CHW in your thoughts and prayers.
I hope that you all have a safe and Happy New Year! We love you all!!!!
Love,
Jessica, Paul and Namine Eiche <3
Tuesday, December 30, 2008
Rewind
Namine is not home. She was supposed to come home last Friday but her heart rate was still high and she had a few destats. We talked with cardiology and the resident and they decided to keep her over the weekend for further observation. They also wanted to keep her until the cardiologists had time to discuss her plan Monday morning. They discussed her this morning and decided that they need to do her cath exam earlier so that they have a game plan for her next heart surgery.
After the cath conference they came and talked to us and told us that they wanted to do her exam tomorrow. She will go at 10:30 this morning to have her exam. This exam is to show the doctors how her blood is flowing, how hard it is pumping and where exactly the PA Band is and how well it is working.
When we know more about when her next surgery is and what is going on I or Paul will try to post to update you all. Love you bunches!
Love,
Jessica, Paul and Namine Eiche
P.S. Keep the prayers coming
After the cath conference they came and talked to us and told us that they wanted to do her exam tomorrow. She will go at 10:30 this morning to have her exam. This exam is to show the doctors how her blood is flowing, how hard it is pumping and where exactly the PA Band is and how well it is working.
When we know more about when her next surgery is and what is going on I or Paul will try to post to update you all. Love you bunches!
Love,
Jessica, Paul and Namine Eiche
P.S. Keep the prayers coming
Friday, December 26, 2008
Home!
Today Namine comes home. She will have to go back in January for her second heart surgery which is earlier than they expected, but she is growing and doing what they wanted and now it is time. At least this visit will be planned. I am on my way to go bring Paul some lunch and then off to the hospital for me before we pack her up and her home. YAY!!! Well I should be on my way. I will post again later today if I remember:)
Love you all!
Jessica, Paul and Namine
Love you all!
Jessica, Paul and Namine
Wednesday, December 24, 2008
The Best Christmas Gift!!!
Hello again from the hospital. I am sending you good news of great joy that will be for all the people. Today in the town of David a Savior has been born for you, he is Christ the Lord. This will be a sign to you, you will find a baby wrapped in clothes and lying in a manger. This is our best Christmas gift of all, and when he came down to live a perfect life for us and die so that we can go to heaven he gave us the perfect gift, his love.
Paul and I will be getting a special gift tomorrow. They are sending Namine home tomorrow morning. She will have to come back the beginning of January for her cath exam and then for her heart surgery but for now she gets to come home with us. So I am sending you good news from our family to yours. Thanks again for all of the prayers. God above is listening and answering our prayers.
Have a Blessed Christmas Day!
Love,
Jessica, Paul and Namine Eiche
Paul and I will be getting a special gift tomorrow. They are sending Namine home tomorrow morning. She will have to come back the beginning of January for her cath exam and then for her heart surgery but for now she gets to come home with us. So I am sending you good news from our family to yours. Thanks again for all of the prayers. God above is listening and answering our prayers.
Have a Blessed Christmas Day!
Love,
Jessica, Paul and Namine Eiche
Tuesday, December 23, 2008
Echo Cardiogram
I said that I would let you all know what the plan is for now. They did her echo this afternoon and it came back inconclusive, because of the obstruction her lungs give to seeing her heart. So the plan is to give her a shot of radiation so her blood glows under a special light. They will give her the shot and take a scan of her body to see how her blood is flowing to her lungs and the rest of her body.
They are going to try and get us home for Christmas but there are no promises so I think that Paul and I are going to pack up her Christmas tree and bring it with us tomorrow so that we can have Christmas Eve. with her.
Ultimately they are going to have to do her second heart surgery sooner than they thought. I think she just got a lot bigger a lot faster than they expected. Our schedule for procedures will be to get the radiation scan, then the first week of January she will get a catheter exam and then they will decide when to do the heart surgery. It is late and I need to clean the apartment and get some things packed for our hospital visit tomorrow. We love you all and miss you all very much. We also can't thank you enough for all of your prayers and thoughtfulness and everything that you all have done for us. God's Blessings to each and every one of you and a Very Merry Christmas and Happy New Year!!!!
Love,
Jessica, Paul and Namine Eiche:)
They are going to try and get us home for Christmas but there are no promises so I think that Paul and I are going to pack up her Christmas tree and bring it with us tomorrow so that we can have Christmas Eve. with her.
Ultimately they are going to have to do her second heart surgery sooner than they thought. I think she just got a lot bigger a lot faster than they expected. Our schedule for procedures will be to get the radiation scan, then the first week of January she will get a catheter exam and then they will decide when to do the heart surgery. It is late and I need to clean the apartment and get some things packed for our hospital visit tomorrow. We love you all and miss you all very much. We also can't thank you enough for all of your prayers and thoughtfulness and everything that you all have done for us. God's Blessings to each and every one of you and a Very Merry Christmas and Happy New Year!!!!
Love,
Jessica, Paul and Namine Eiche:)
Back Again:(
Well folks,
We had been home for almost a week and throughout the week Namine's heart rate would jump to about 220 beats per minute. This happened a couple of times throughout the week, and we just brushed it off thinking it was our wonky pulse ox. On one other night her apnea monitor went off saying that she had high heart rate, I believe this was Thursday night that it happened. Over the weekend it progressively got worse. Her heart rate between Saturday night and Sunday her heart rate stayed between 170 and 199 while resting. Also her oxygen levels were going down. Not drastically like last time but they were hanging around in the low 70's. We called the special needs doc and she told us to come into the ER. We got there about 10pm on Sunday and they finally admitted her about 5:30am. They admitted her for observation. Paul and I were just beat by the time that they admitted her, we got all of the paperwork done and headed home for a nap. Not a long one though:(
Today on Tuesday they are going to do an echo cardiogram to see the blood flow to the heart. If they can't see what they need to see they will do a catheter scope. We do not know when we will be able to come home. If she is indeed in need of her second heart surgery I do not know if they will keep us at the hospital until they can do it or if they will send us home and we will come back a couple of days before her surgery. It is a game of waiting that makes the mama nervous.
I will post again when I find out what they found from her echo. We love and miss you all. Keep praying and keep storming is all that we can ask at this point in time.
God's Blessings,
Jessica, Paul and Namine Eiche
We had been home for almost a week and throughout the week Namine's heart rate would jump to about 220 beats per minute. This happened a couple of times throughout the week, and we just brushed it off thinking it was our wonky pulse ox. On one other night her apnea monitor went off saying that she had high heart rate, I believe this was Thursday night that it happened. Over the weekend it progressively got worse. Her heart rate between Saturday night and Sunday her heart rate stayed between 170 and 199 while resting. Also her oxygen levels were going down. Not drastically like last time but they were hanging around in the low 70's. We called the special needs doc and she told us to come into the ER. We got there about 10pm on Sunday and they finally admitted her about 5:30am. They admitted her for observation. Paul and I were just beat by the time that they admitted her, we got all of the paperwork done and headed home for a nap. Not a long one though:(
Today on Tuesday they are going to do an echo cardiogram to see the blood flow to the heart. If they can't see what they need to see they will do a catheter scope. We do not know when we will be able to come home. If she is indeed in need of her second heart surgery I do not know if they will keep us at the hospital until they can do it or if they will send us home and we will come back a couple of days before her surgery. It is a game of waiting that makes the mama nervous.
I will post again when I find out what they found from her echo. We love and miss you all. Keep praying and keep storming is all that we can ask at this point in time.
God's Blessings,
Jessica, Paul and Namine Eiche
Wednesday, December 17, 2008
Home again home again Jigidy jig:) Again:D
Happy Holidays to you all!! Paul and I have been sort of out of it lately with getting new training and trying to figure out the nursing schedule and all of Namine's changes, so we apologize for not keeping you in the loop.
We brought Namine home on Monday of this week, and she is doing fabulous. It is nice that she will be home for Christmas. Her cardiac doctor is assuming that she will go in to have her second heart surgery in February. But if by chance she has to go in earlier then so be it.
Namine has been such a great blessing to our family. She is loved by one and all. Thank-you all again for your prayers and support. We love you all! and we also ask that you keep praying for us.
God's Blessings,
Jessica Eiche
We brought Namine home on Monday of this week, and she is doing fabulous. It is nice that she will be home for Christmas. Her cardiac doctor is assuming that she will go in to have her second heart surgery in February. But if by chance she has to go in earlier then so be it.
Namine has been such a great blessing to our family. She is loved by one and all. Thank-you all again for your prayers and support. We love you all! and we also ask that you keep praying for us.
God's Blessings,
Jessica Eiche
Thursday, December 11, 2008
Home on Monday
Hello Family and Friends,
We are going home on Monday December, 15. YAY!!!!! Paul and I have done our training on the vent/c-pap machine. We both get to spend the night at the hospital on Saturday :( The bed isn't the most comfortable. Whatever we have to do to get her home, we don't care. We have some nursing set up for when we come home and the rest will be figured out when we meet on Saturday.
If you all could email your addresses so that we can send Christmas cards I would appreciate it. We have pictures for you all if we can get them out on time:)
Namine is doing great. She is just amazing at how she just rolls with the flow. She is just a bright and cheery person. Whenever I need a pick me up I just look at the pictures on the site when I couldn't go and see her and when I could see her it was even better. She is doing great with all of her treatments and adapting to the vent/trac collar/HME. She is improving and getting better and it just amazes me to see her going through all of this and she still has a smile on her face. She is growing and getting bigger everytime I see her. She was 12 and half pounds on Sunday. I just can't believe how far she has come. She can hold her head up and she is starting to learn how to sit and it is just amazing.
We appreciate all of your prayers and cards and comments. Please keep the prayers coming, miracles do happen.
Love,
Jessica, Paul and Namine Eiche
We are going home on Monday December, 15. YAY!!!!! Paul and I have done our training on the vent/c-pap machine. We both get to spend the night at the hospital on Saturday :( The bed isn't the most comfortable. Whatever we have to do to get her home, we don't care. We have some nursing set up for when we come home and the rest will be figured out when we meet on Saturday.
If you all could email your addresses so that we can send Christmas cards I would appreciate it. We have pictures for you all if we can get them out on time:)
Namine is doing great. She is just amazing at how she just rolls with the flow. She is just a bright and cheery person. Whenever I need a pick me up I just look at the pictures on the site when I couldn't go and see her and when I could see her it was even better. She is doing great with all of her treatments and adapting to the vent/trac collar/HME. She is improving and getting better and it just amazes me to see her going through all of this and she still has a smile on her face. She is growing and getting bigger everytime I see her. She was 12 and half pounds on Sunday. I just can't believe how far she has come. She can hold her head up and she is starting to learn how to sit and it is just amazing.
We appreciate all of your prayers and cards and comments. Please keep the prayers coming, miracles do happen.
Love,
Jessica, Paul and Namine Eiche
Friday, December 5, 2008
4th Floor
Hello all,
Namine has finally moved to the 4th floor. We moved up yesterday. She is doing a world better than when we brought her in, but she still has a way to go. It is not her heart thank God, but it her lungs. The HME is causing to much stress when we have to bring her places and the cold and with it being viral season she got a double whammy.
The doctors are hoping that we will be home in a couple of weeks to home for Christmas, but they are not sure yet. The other hic-cup that we are having now is that we have nursing but no one is vent certified because she was never on a vent, but now they are thinking of sending her home on it, but only for the night. Paul and I have a care conference sometime with Dr. Noe and Cindy Gore and a whole bunch of other people but we have to wait to hear from them when it will happen.
I just wanted to update and give you guys the good news and I just have a huge favor besides continualy pray for us, if you leave a message can you say how you know us or how you heard about our website. I am not very good with names, faces yes, names no, so if you could please just let us know I would appreciate it.
God's Blessings,
Paul, Jessica and Namine Eiche
Namine has finally moved to the 4th floor. We moved up yesterday. She is doing a world better than when we brought her in, but she still has a way to go. It is not her heart thank God, but it her lungs. The HME is causing to much stress when we have to bring her places and the cold and with it being viral season she got a double whammy.
The doctors are hoping that we will be home in a couple of weeks to home for Christmas, but they are not sure yet. The other hic-cup that we are having now is that we have nursing but no one is vent certified because she was never on a vent, but now they are thinking of sending her home on it, but only for the night. Paul and I have a care conference sometime with Dr. Noe and Cindy Gore and a whole bunch of other people but we have to wait to hear from them when it will happen.
I just wanted to update and give you guys the good news and I just have a huge favor besides continualy pray for us, if you leave a message can you say how you know us or how you heard about our website. I am not very good with names, faces yes, names no, so if you could please just let us know I would appreciate it.
God's Blessings,
Paul, Jessica and Namine Eiche
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