Tuesday, September 8, 2009
We've moved!
That's right, kids. Our new home is eichefam.net. Get all your up-to-date (as up-to-date as busy parents can manage, anyway) Namine news there from now on!
Thursday, August 20, 2009
Holy Crap
It's been a looooong time since an update. I apologize for that, and I can only hope that we still have some readers! Jessica and I are without an internet connection at the moment. I don't really know how long I have to post this, either. It all depends on when "linksys" realizes someone is borrowing his internets. (Although judging from the default settings, it'll be a while.)
So, lemme give you a quick rundown of the happenings here: Namine turned one year old, that's the biggie! Our little girl is getting big, and quick. She's pulling herself more and more with her arms, but she's also moving her legs, as though to crawl. Getting stronger by the day, that's for sure. She's eating more, and she loves cheese puffs, but we only recently found out she's actually allergic to cheese. Maybe also to other dairy, so we're steering clear of all of it for the time being.
Namine recently had a sleep study done to determine if she can do without the vent at night. The results came back to us just yesterday, and with good news! So last night was the first night in a long time that she slept with no mechanical intervention whatsoever. (The oxygen and humidity, in my mind, do not count.) I think she slept better than she ever did with the vent. At any rate, she did extremely well.
Lastly (at least that I can think of), Namine will soon be having her foot (feet, actually) operation soon. Should be scheduled within 2 weeks, so perhaps she'll have it sometime early next year. After that, we'll see how she does with putting weight on her legs - that will determine whether or not she needs further operation on her legs.
So, lemme give you a quick rundown of the happenings here: Namine turned one year old, that's the biggie! Our little girl is getting big, and quick. She's pulling herself more and more with her arms, but she's also moving her legs, as though to crawl. Getting stronger by the day, that's for sure. She's eating more, and she loves cheese puffs, but we only recently found out she's actually allergic to cheese. Maybe also to other dairy, so we're steering clear of all of it for the time being.
Namine recently had a sleep study done to determine if she can do without the vent at night. The results came back to us just yesterday, and with good news! So last night was the first night in a long time that she slept with no mechanical intervention whatsoever. (The oxygen and humidity, in my mind, do not count.) I think she slept better than she ever did with the vent. At any rate, she did extremely well.
Lastly (at least that I can think of), Namine will soon be having her foot (feet, actually) operation soon. Should be scheduled within 2 weeks, so perhaps she'll have it sometime early next year. After that, we'll see how she does with putting weight on her legs - that will determine whether or not she needs further operation on her legs.
Thursday, July 2, 2009
Birthday Surprise!
Namine is doing awesome. She is having a blast with her new kid kart and is just enjoying the summer.
Her birthday party is all ready and everything just needs to be set up, which we can't do until Sunday. I pray that we have a day of sunshine so that we can be outside.
Her cakes are ordered and food is all taken care of. If I missed anyone on the invite list and you would like to come just call us or email by Saturday.
We wish everyone a Happy Fourth of July. Thanks to all of the troops that have served, are serving and those that are still in training. Thanks to all of those that gave their lives to help protect and serve our country.
God's Blessings to everyone.
Love,
Jessica, Paul and Namine
Her birthday party is all ready and everything just needs to be set up, which we can't do until Sunday. I pray that we have a day of sunshine so that we can be outside.
Her cakes are ordered and food is all taken care of. If I missed anyone on the invite list and you would like to come just call us or email by Saturday.
We wish everyone a Happy Fourth of July. Thanks to all of the troops that have served, are serving and those that are still in training. Thanks to all of those that gave their lives to help protect and serve our country.
God's Blessings to everyone.
Love,
Jessica, Paul and Namine
Monday, June 29, 2009
Birthday Party!
Wow! We get to celebrate a very deserving and happy 1st birthday. Long ago over a year ago we were told that she might not make it this far, but she has and she is doing better than anyone can believe. She is the joy of our lives and the happiness that never goes away.
She is doing fabulous. She doesn't have to be on the vent except at night. She is stating perfectly and she is learning to move. We don't have another doctor's appointment until the beginning of August so we are home free for a couple of months. We are celebrating her first birthday next weekend, and her reaffirmation of her baptism.
We can't thank all of you enough for the prayers that have stormed heaven, but we have another request for prayers. One of my friends from school is pregnant and there was a little blood in the uterus. Pray that all goes well and that the baby is happy and healthy.
Love,
Jessica, Paul and Namine
She is doing fabulous. She doesn't have to be on the vent except at night. She is stating perfectly and she is learning to move. We don't have another doctor's appointment until the beginning of August so we are home free for a couple of months. We are celebrating her first birthday next weekend, and her reaffirmation of her baptism.
We can't thank all of you enough for the prayers that have stormed heaven, but we have another request for prayers. One of my friends from school is pregnant and there was a little blood in the uterus. Pray that all goes well and that the baby is happy and healthy.
Love,
Jessica, Paul and Namine
Wednesday, June 10, 2009
Finally:)
Sorry everyone for not posting more often. It has been quite a hectic past couple of months. Namine has been home since March and doing great. We spent two days in the hospital for heart monitoring and they called it equipmentitis. She has been stating in the low 90's to even 100% O2 stats at the cardiac visits.
We are slowly weening her off of the vent and she is up to about 12 hours on the trac collar during the day and the vent only at night. She is up to about 2 hours on the HME which is awesome. She hasn't gained any weight and she has grown an inch and a half.
The biggest news that we have is that at our last trac vent clinic they gave her a Passy-Muir speaking valve. She loves it. She is only allowed to use it twice a day up to ten minutes each time. She gets mad when you take it off, but it is hard work to have on so she usually poops out after we take it off. If you do not know how the valve works it is a little device that goes over her trac like a trac guard, but when you breath out it blocks the hole so that the air is forced around the trac and into the wind pipes. It isn't hard to breath in, but is difficult. As she builds up more of a tolerance to it she will be able to be on it longer.
The other news that we got it that she is behind in her physical activities. Which we already knew from being in the hospital so long, but the one that we were worried about the most she is right on track.
We have moved to a lower apartment, so our delivery men just love it. It is a bigger apartment and now we have Namine's crib in our room. She loves sleeping in her bed more than the playpen.
Well everyone she is awake and getting kind of angry that I am not paying attention to her so I am going to let you all go. I hope you all had a fabulous Mother's day and a great Memorial Day weekend.
God's Blessings to you all. I can't say it enough but thank-you for all of your thoughts prayers and concerns. Keep storming heaven not only for our bundle of joy but for everyone out there. Our troops near and far, our neighbors, pastors, teachers, delivery drivers, friends and enemies. God is watching and answering.
Love,
Jessica, Paul and Namine Eiche
We are slowly weening her off of the vent and she is up to about 12 hours on the trac collar during the day and the vent only at night. She is up to about 2 hours on the HME which is awesome. She hasn't gained any weight and she has grown an inch and a half.
The biggest news that we have is that at our last trac vent clinic they gave her a Passy-Muir speaking valve. She loves it. She is only allowed to use it twice a day up to ten minutes each time. She gets mad when you take it off, but it is hard work to have on so she usually poops out after we take it off. If you do not know how the valve works it is a little device that goes over her trac like a trac guard, but when you breath out it blocks the hole so that the air is forced around the trac and into the wind pipes. It isn't hard to breath in, but is difficult. As she builds up more of a tolerance to it she will be able to be on it longer.
The other news that we got it that she is behind in her physical activities. Which we already knew from being in the hospital so long, but the one that we were worried about the most she is right on track.
We have moved to a lower apartment, so our delivery men just love it. It is a bigger apartment and now we have Namine's crib in our room. She loves sleeping in her bed more than the playpen.
Well everyone she is awake and getting kind of angry that I am not paying attention to her so I am going to let you all go. I hope you all had a fabulous Mother's day and a great Memorial Day weekend.
God's Blessings to you all. I can't say it enough but thank-you for all of your thoughts prayers and concerns. Keep storming heaven not only for our bundle of joy but for everyone out there. Our troops near and far, our neighbors, pastors, teachers, delivery drivers, friends and enemies. God is watching and answering.
Love,
Jessica, Paul and Namine Eiche
Sunday, May 24, 2009
Jaw Distraction
Hello to Everyone,
Paul and I brought Namine in to see Dr. Denni this past Monday to find out when she will be able to have her jaw distraction done, so we can remove the trac and g-tube. It was mostly bad news but some good news. We have to ween her faster off of the vent then we have been doing. She needs to be off of the vent completely for two months. When that is finished then they will run a series of tests to find out if the jaw distraction is what she needs and if it will help. The good news we have been pushing Namine a little harder to come off of the vent and she has been doing fantastic. She is up to about 8 hours off of the vent. She still has some difficulty with the HME but is slowly working her up on that as well.
More good news. We had a cardiac visit on the 22nd after about 3 other visits and all on her HME, I didn't think was doing very well, she was stating at 97. So that is just AWESOME!!!! And that stating is not even on the full amount of oxygen she needs. When she is on the HME the portable is supposed to be at 6, but we run out to quickly so Lori told us to put it at 3, and she was doing fantastic. Namine also kept pulling the mask off and chewing on it so i am not even sure how much oxygen she was getting. But like I have said in almost all of my posts keep storming heaven because miracles are happening with this little girl. She has touched the lives of many and because of her courageous story lives have been changed.
We love you all!
God's Blessings,
Jessica, Paul and Namine Eiche
Paul and I brought Namine in to see Dr. Denni this past Monday to find out when she will be able to have her jaw distraction done, so we can remove the trac and g-tube. It was mostly bad news but some good news. We have to ween her faster off of the vent then we have been doing. She needs to be off of the vent completely for two months. When that is finished then they will run a series of tests to find out if the jaw distraction is what she needs and if it will help. The good news we have been pushing Namine a little harder to come off of the vent and she has been doing fantastic. She is up to about 8 hours off of the vent. She still has some difficulty with the HME but is slowly working her up on that as well.
More good news. We had a cardiac visit on the 22nd after about 3 other visits and all on her HME, I didn't think was doing very well, she was stating at 97. So that is just AWESOME!!!! And that stating is not even on the full amount of oxygen she needs. When she is on the HME the portable is supposed to be at 6, but we run out to quickly so Lori told us to put it at 3, and she was doing fantastic. Namine also kept pulling the mask off and chewing on it so i am not even sure how much oxygen she was getting. But like I have said in almost all of my posts keep storming heaven because miracles are happening with this little girl. She has touched the lives of many and because of her courageous story lives have been changed.
We love you all!
God's Blessings,
Jessica, Paul and Namine Eiche
Tuesday, May 12, 2009
Hospital
Hello Everyone,
I just wanted to quickly update everyone. We had to bring Namine in on Sunday to the Hospital. She was having crazy heart rates. They still don't know what was causing it and they sent us home today. If I get a video of her laughing and talking then I will have Paul post it tonight. She is just so happy to be home.
Back to her heart rates. It was over 200 Friday morning and she had a fever so we brought her to the ER and she was fine, no fever nothing. We got home she puked and pooped all over and we changed her trac and she puked again. So we called the hospital to special needs and they told us to start the antibiotic. Friday night her heart rate dropped down into the low 50s, I would just nudge her and she shoot back up to 90. She also kept having apnea alarms on the vent so I didn't get any sleep. Then Saturday she was fine. Nothing:D or so we thought. Saturday night her heart rate dropped down in the 50s again and Paul nudged her and she shot up to 70 and dropped back down again and so he had to wake her up and then she was fine, but Sunday morning her heart rate was over 210. Again we called special needs and they told us to bring her in. They wanted to monitor her for at 24 hours, but they kept her an extra day for more heart monitoring with a halter monitor. No evidence at all of what we were talking about. Now we have to wait and see if anything comes back from the halter.
All I can say is she is home and as happy as can be. It is time to eat and get her ready for bed. I will try and keep you all posted and I will talk to you all later.
Thank-you all for the prayers and concerns. Keep storming heaven for our little angel.
God's Blessings,
Jessica, Paul and Namine Eiche
I just wanted to quickly update everyone. We had to bring Namine in on Sunday to the Hospital. She was having crazy heart rates. They still don't know what was causing it and they sent us home today. If I get a video of her laughing and talking then I will have Paul post it tonight. She is just so happy to be home.
Back to her heart rates. It was over 200 Friday morning and she had a fever so we brought her to the ER and she was fine, no fever nothing. We got home she puked and pooped all over and we changed her trac and she puked again. So we called the hospital to special needs and they told us to start the antibiotic. Friday night her heart rate dropped down into the low 50s, I would just nudge her and she shoot back up to 90. She also kept having apnea alarms on the vent so I didn't get any sleep. Then Saturday she was fine. Nothing:D or so we thought. Saturday night her heart rate dropped down in the 50s again and Paul nudged her and she shot up to 70 and dropped back down again and so he had to wake her up and then she was fine, but Sunday morning her heart rate was over 210. Again we called special needs and they told us to bring her in. They wanted to monitor her for at 24 hours, but they kept her an extra day for more heart monitoring with a halter monitor. No evidence at all of what we were talking about. Now we have to wait and see if anything comes back from the halter.
All I can say is she is home and as happy as can be. It is time to eat and get her ready for bed. I will try and keep you all posted and I will talk to you all later.
Thank-you all for the prayers and concerns. Keep storming heaven for our little angel.
God's Blessings,
Jessica, Paul and Namine Eiche
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