Yes, finally the end is in sight. We finally heard from cardiology on Sunday, and they told us that they were going to give her some blood to try and boost her oxygen levels that way. They could not get the IV in on Sunday so we had to wait until yesterday. They got the IV in and the blood started and finished and her oxygen levels went from being down in the high 60s/low 70s to being up in the 80s.
I talked with a cardiologist that had been following Namine down in the PICU and she told me that they were going to start from scratch with her heart medicine and take her off of the lasix and see how she does. She was off of all of her meds for 24 hours and her echo looked like it did before. YAY!!!!!!!!! So now the plan is to do a sleep study and figure out if she needs the heart meds and if so which ones and all in all when does she get to go home.
This cardiologist Dr. Ganiyem (not so sure of the spelling) told me that if all goes well that she will come home this weekend. Which means for a trach patient on Monday!!!
Praise God from whom all blessings flow
Praise Him all creatures here below
Praise Him above ye heav'nly host
Praise Father, Son and Holy Ghost.
Thank you for all that you have given us through your thoughts and prayers. We continue to storm heaven for not only our little angel but for all whom we have met on our journey.
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Schultz Family if you want to visit you are more than welcome. It would be great to put a live face to all of the comments:)
ReplyDeleteWHAT WONDERFUL NEWS!!!!!!!!!!!!!!! Oh, my goodness could this be true?!?! God works miracles in His time and it is looking like that time is coming upon us for little Namine!!! Wahooooooooooo! How cool is THIS?! Dr. Ghanayem, or "Dr. Nancy" as they call her, has helped SOOOOOOO many of Jacob's little heart buddies and we are so happy that she will be helping Namine, too! I am going to try my best to come up to CHW on Saturday to visit a little boy having surgery on Friday, so if I do, I will check your site before I leave the house to see if you are still there! I know it's a hassle getting discharged so I'll leave you alone if you're in the midst of signing!!! Yay for Team Eiche!!!
ReplyDeleteLots of love and prayers from Jen, Jeremy & Jacob Schultz
www.caringbridge.org/visit/jacobjeremyschultz
YEAH!!!!!!!!!!!!! Grandma E. can't wait to have Namine in her own home in her own crib in the beautiful room you two have made for her! We'll be there supporting you 3 all the way!
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