Has it really been nearly 2 weeks?

It's still hard to believe we're home. Namine is such a joy to have in the house - we've waited so long to have her all to ourselves. She's almost always full of smiles, a couple nights ago being an exception, but anybody would be a little crabby with only 2 hours of sleep. But I can tell you that our little munchkin scrunchkin adores being home.

We've been to the doctor twice; once for her cardiology clinic, and once for a suck-swallow study. Both went fine. Not only that, but we can officially start feeding her baby food!

You'll notice the site has changed again. In trying to iron out some of the problems people have been having, I decided to start over. I've tested this new layout in every browser on Windows and Mac that I can think of, and I don't see any problems. Commenting should be a breeze now, too. If anybody still has issues, shoot me an email: peiche at gmail.com.

I've uploaded a bunch of new pictures, which you can see on the blog page or the external photo album. And yes, there are pictures of her at home in this batch!

I'll upload a bunch more videos when I get home tonight. Actually, it probably won't happen until most of you are asleep, so look for them tomorrow.

On a somewhat personal note, I laughed so hard when someone at work complained about how much work their (normal) baby is. Sister, you have no idea.

I will say, though, we are extremely, extremely fortunate that Namine sleeps through the night. It's the machines that keep us up (or wake us up). The apnea monitor we haven't had a problem with, but that stupid vent alarms when there shouldn't be any. Low pressure, my foot. Namine just pushes air around the trach, creating that low pressure. Oh, well.

I can finally say it, HOME!

God has answered and is still answering all of our prayers. He has been working miracles from day one. He is with us no matter what.

I started this blog off the way I did because the rumors are true, Yes all of you that is right, Namine came home on Monday. It has been great having her home. We have been playing and singing and all sorts of stuff.

Namine loves to sit up and be in her boppy chairs, watch spongebob and play with her toys. Paul will upload some pictures of her being home when he gets home.

I need to get back to her it is almost time to eat. Call anytime:)

Continue to keep praying for us we still have a long road ahead of us. Love and hugs to all of you!

God's Blessings,
Jessica, Paul and Namine Eiche

Well What Can I Say.

Hello Family and Friends,
Well it is a day that has come and gone. Namine was supposed to come a long time ago, but that day was pushed back for one reason or another. Then she was supposed to go home a different day that was pushed off for one reason or another. Then she was supposed to come home Sunday and she couldn't because she was destating Friday night. She was supposed to come home on Wednesday but she was destating again on Tuesday night. She had a sleep study because of the destates and while doing the study she was destating, so no home again. Because they can't figure out why she is destating she will be here until they figure it out.

I have prayed, cried, prayed some more and I don't know what to anymore. My heart is aching for the day to bring her home. I have to trust that God is watching out for her and that He is guiding the doctors hands and minds to make the best decisions for her. We love her with all of our hearts and we want the best for her.

I hope that all is well with everyone. Continue to storm heaven for our little angel and we will be home soon. God's Blessings to all of our guests.

Love,
Jessica, Paul and Namine Eiche

We Hate Being Sick!!

Warm weather what have you done. You have made our allergies go bonkers, bonkers, bonkers so my poor husband is sicker than a dog. He aches and sneezes his ribs hurt from falling on the ice, our room is littered with Kleenex (oh wait he picked them up). Namine is stuck at CHW I hope she will come home soon. Oh warm weather please leave so we can not have Allergies.

Alright that was my little song. It was quite interesting. You should have been here while I was singing. :) Namine did not come yesterday because they wanted to run a couple of tests to find out why her heart rate has been high this past week, and to see if she had an infection in her leg. Well nothing has come back out of the ordinary with Namine, but as you can tell from above Paul is sick again.

They are going to give him until Wednesday and then they are going to send her home. It is just non-stop sickness. If we aren't sick she is. I hope that you all have a Happy Valentine's!

God's Blessings to each and everyone of you and the prayers that have reached heaven are being answered. We love you even if we don't know you, we thank-you even if we don't know, we appreciate you even if we don't know you. God is listening and answering and giving us miracles over and over again.

Love,
Jessica, Paul and Namine Eiche

SUNDAY!!!!!!

Sunday is the official day set by Doctor Gordon.  We hope that Namine can start to tolerate her feeds all day by today, or I don't know what they plan on doing.  She did alright yesterday, but she did throw-up and we think it was just because her feeds are too close together.  They keep uping the amount that they want to give her but her belly just can't tolerate all of that food as fast, and if they slow it down she will be eating all day long.  So I hope that they have it all figured out.

I am not able to be there for rounds today because I have to wait for the oxygen to be delivered, but I am going to call and find out what they have to say just to make sure that Sunday is still the day.

Well keep praying for us and we will try our best to keep you all updated.  Our love and God's blessings to all of you!!

Love,
Jessica, Paul and Namine

Not Home Yet

First off, my apologies. We've been a little lacking in updates, I know. We've been a little busy. Wednesday has come and gone, and Namine is not yet home.

Monday night, Namine was not doing too well - she was throwing up frequently, and so the doctors were not comfortable sending her home the next day. They did a floroscopy (I hope I didn't butcher that too badly) yesterday to see if the G-tube is in the right place. It is placed correctly, so we're not sure why Namine's not tolerating her feeds.

When she gets the Pedialite or partial-strength feeds (part formula and part Pedialite), she's fine. When her feed is just formula, she throws up, either out of her mouth or backing up out of the G-tube. Could be she just isn't comfortable with this new one, but at this point no one knows.

I would love to tell you when she's coming home, but I can't. Doctor Gordon (the special needs doctor we're in touch with the most) was running around like a chicken with its head cut off yesterday, so he wasn't able to give us a lot of answers. I hope we'll be able to find out more today.

Also, on the topic of the website: I know a lot of you are unable to post comments, for whatever reason. I believe I've narrowed down why and hope to fix it soon. I'm sorry for the inconvenience.