Happy Halloween

Hello Family and Friends,
We just posted our little cutie in her Red Hot Chili Pepper costume. I hope you enjoy the cute pictures. Also the one with her ghosty sleeper on that says boo on her bottom. It is just adorable.

Hopefully still next week.

We are waiting on Nursing so if anyone can help us we would appreciate it. Tell anyone to check out the children's website and apply there. We really need help.

Thank-you and we love you all.
Jessica, Paul and Namine

Home!!!!

Yes, finally the end is in sight. We finally heard from cardiology on Sunday, and they told us that they were going to give her some blood to try and boost her oxygen levels that way. They could not get the IV in on Sunday so we had to wait until yesterday. They got the IV in and the blood started and finished and her oxygen levels went from being down in the high 60s/low 70s to being up in the 80s.

I talked with a cardiologist that had been following Namine down in the PICU and she told me that they were going to start from scratch with her heart medicine and take her off of the lasix and see how she does. She was off of all of her meds for 24 hours and her echo looked like it did before. YAY!!!!!!!!! So now the plan is to do a sleep study and figure out if she needs the heart meds and if so which ones and all in all when does she get to go home.

This cardiologist Dr. Ganiyem (not so sure of the spelling) told me that if all goes well that she will come home this weekend. Which means for a trach patient on Monday!!!

Praise God from whom all blessings flow
Praise Him all creatures here below
Praise Him above ye heav'nly host
Praise Father, Son and Holy Ghost.

Thank you for all that you have given us through your thoughts and prayers. We continue to storm heaven for not only our little angel but for all whom we have met on our journey.

D:

Well, we are not going home on Tuesday after all. The doctors had planned on putting Namine on C-Pap (not a ventilator, but a high pressure air flow that would assist her breathing but would not breathe for her) on Monday, but never did. We happened to find this lovely bit of information out on Wednesday, but that's a whole 'nother ball o' wax.

Anyhoo, they decided not to resort to C-Pap yet, because her dropping her stats could have been related to her heart. So yesterday they did an echo cardiogram, and cardiology took a look at it today. We haven't yet heard from cardiology, so we hope to find that out tomorrow.

:(

Well Paul and I have been sick so we haven't been able to go to the hospital. We call everyday to find out how she has been doing and the nurse tells us that she is doing fine.

We find out tomorrow if she will be coming home next week or not. We have to set up nursing, but I think that that will be done when we have to come home.

Paul and I have some training that we need to finish, but for the most part we are ready for her to come home, sorta. We have her equipment that was delivered last week that we need to set up, but that will be done this weekend. There is so much it is quite intimidating.

I will have Paul Post tomorrow about all the fun things that we learn from our conference.

Thank-you again to all of you for your thoughts and prayers, we need and appreciate them with utmost thanks.

Home in 2 Weeks

Well it has been a long wait, but we are hopefully coming home in two weeks. We had a care conference with the docs today and they told us that they are not going to do surgery on the artery until she has her "glen" procedure. Which is a sigh of relief for all of us. We do not know the exact day that she will come home they are giving us an estimated time of two weeks to maybe three weeks.

We have some more training to do with her equipment, plus there's the all new G-tube which requires training of its own, so it's sort of a good thing that she's not coming home quite yet. Then there's the matter of her nursing, which we have yet to get settled.

All in all, we're getting closer. Looking forward to when we finally have her home to ourselves!

Maybe, Maybe Not

Well the G-tube was a success, but we do not know when or if we will be able to come home. When they did the G-tube they also did another bronchial scope because she keeps dropping her stats. When they went down and took a look they found that there was a mass pushing against her left lung. This mass was described as being a blood vessel because it is pulsing. Now because of this we are not sure if we will get to come home on the 20th. Because it is a vessel we have to have a conversation with the cardiologist to find out what the next step is going to be.

On our way home tonight we bumped into Dr. Mitchel, he is the man that performed the heart surgery, we told him what was going on and he said he was going to go right away and take a look at the findings and that he would get back to us. I cannot say enough how much Dr. Mitchel is just the best doctor I have met. When we do find out what they are going to do we will let everyone know.

On a lighter note, I do not have the vac anymore and my 13 and a half cm hole is now only 2cm.

Please continue to keep all of us in your prayers and thoughts. If we keep storming heaven like we have been our prayers will continue to be answered and our efforts will not be in vein.

We Love You All!!!

G-Tube A Success

The doctor came back to tell us that Namine's G-tube operation was successful. The nurse told us beforehand that it would take an hour and a half, but I think it was a mere half hour, if that. They just came out again and told us that one of us could come back and see her, so I sent Jessica.

I'll get to see her soon. XD

G-tube Monday

At least, tentatively.

Namine is doing well with her feedings, but she's still unable to meet the volume required for her age and size. Consequently, she needs a supplement in order for them to send her home. The NG tube in her nose has to come out, so that means one thing: G-tube. The plan is for them to do the operation on Monday.

Ultimately, they want to send her home on the 20th. Since you are reading mere text, it cannot be conveyed to you the amount of joy and excitement I have typing that out.